New York Attorney General Letitia James urged New Yorkers to delete their 23andMe data after the genetic testing company filed for bankruptcy on March 23.
“New Yorkers’ genetic data is sensitive information that must be protected at all costs,” she said.
In a “Consumer Alert” report, James provided a step-by-step guide on deleting sensitive data, as the company plans to sell its genetic testing enterprise.
New York joins several states like California, North Carolina and more that advised users to destroy their sensitive data online before the company sells its assets.
California Attorney General Rob Bonta issued a consumer alert on users’ rights to delete their private information.
“Given 23andMe’s reported financial distress, I remind Californians to consider invoking their rights and directing 23andMe to delete their data and destroy any samples of genetic material held by the company,” Bonta said.
U.S. Bankruptcy Judge Brian Walsh approved 23andMe’s plan to sell its 15 million users’ sensitive DNA information. 23andMe issued a statement reassuring that the company’s sensitive data will follow thorough precautions.
“To constitute a qualified bid, potential buyers must, among other requirements, agree to comply with 23andMe’s consumer privacy policy and all applicable laws with respect to the treatment of customer data,” the company wrote in a statement.
Offers by potential bidders are due May 7 and the last hearing in the bankruptcy court will be in June. Experts say there is an incentive for researchers to get their hands on the company’s genetic data. Genetic makeup can reveal a lot about a person, from insight into possible diseases to a glimpse into the generation to come.
“There’s health insurance companies that are interested in this data, there’s life insurance companies that are interested in this data,” Bonta told ABC News 7.
The company’s genetic testing also reveals an individual’s likelihood of getting certain diseases, which could benefit researchers who can make personalized medication.
Vasant Dhar, a business and data science professor at New York University, told CNN that comparing and combining clinical data with genetic information could make for more accurate diagnoses.
Still, many fear what will happen to their stored genetic information. Dhar said that this data could become a negative tool.
“One of the dark sides of this space is that with genetics, people know a hell of a lot about you,” he said. “And, yeah, they could exploit that.”
Those who have their genetic information with 23andMe have until June to remove their information before data is transferred.
